THE JACK AND J.T. SNOW SCIENTIFIC RESEARCH FOUNDATION
  • Snowman Classic Cocktail Competition

    Join us for an “Iron Chef-like” Cocktail Competition with eight contestants and bartenders from San Francisco area bars plus one San Francisco Giant competitor.

    Sunday, June 15, 2014 6:00-9:00 PM

    Hamlin Mansion 2120 Broadway St., San Francisco, CA 94115

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  • 4th Anuual Run to

    Beat Wolfram Syndrome

    On March 23, 2014, Team Alejandro will participate in The Oakland Running Festival in honor of 10-year old Alejandro Jimenez, Raquel Gebel, and all of the children affected by Wolfram syndrome.

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  • Regis Philbin Narrates Snow Foundation Video

    Television legend Regis Philbin lent his time and talent to help support the Snow Foundation by narrating an 11-minute short film on the Snow family and their fight to end Wolfram syndrome. A Notre Dame alum and fan of Jack Snow, Philbin joined forces with the staff of the foundation to create this moving and informative film.

    Watch Video Now
  • Wolfram Syndrome Researcher Is Making Headlines

    Read about Dr. Hershey's work as a professor of psychiatry at Washington University School of Medicine in St. Louis, and her career using brain-imaging tools to conduct research on diabetes, Parkinson’s disease, obesity, Tourette syndrome and Wolfram syndrome.

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  • Coach Fisher and Friends Celebrity Softball Game

    The Snow Foundation was one of Coach Fisher's selected charities to be highlighted and supported at the game. A great time was had by all and Raquel and Jack Gebel especially enjoyed meeting Ozzie Smith.

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  • How It All Began

    When Stephanie and Barclay Gebel found out that their daughter, Raquel, was diagnosed with Wolfram syndrome, they had nowhere to turn for answers or support. There is little known about Wolframs and they knew it was up to them to help change this.

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  • Photo of Jack Snow's hands holding the feet of granddaughter, Raquel Gebel and the hands of Stephanie Snow Gebel, his daughter.

    Three Generations of Hope

    This picture is of Jack Snow, his daughter Stephanie and the feet of his granddaughter Raquel. Jack went with Stephanie to take Raquel’s three month pictures, the photographer thought this would be a special and unique way to have her ”Papa” included. Unfortunately, six months later, Jack passed away from complications from a staph infection. We believe this photo truly captures the spirit of our mission.

  • Photo of J.T. Snow and his niece Raquel Gebel

    J.T. Snow and his Inspiration

    Raquel Gebel, the niece of J.T. Snow, was diagnosed in late 2010 with Wolfram syndrome, a rare and devasting form of Type I Diabetes. Since the diagnosis, Snow has worked tirelessly to raise awareness of Wolfram syndrome and funding to provide ongoing research on the disease.

  • The Snowmen

    Jack Snow and his son J.T. Snow

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What Is The Jack and J.T. Snow Scientific Research Foundation?

The Jack and J.T. Snow Scientific Research Foundation began as The Snowman Fund to raise money for Wolfram syndrome research at Washington University's School of Medicine (WUSM) in late 2010. The Fund has now evolved into the Foundation, sharing the same mission, to raise awareness of and funding for research that one day will stop the progression of Wolfram syndrome. Wolfram syndrome is a rare disease that presents itself as juvenile diabetes that results in the degradation of the nerve cells in the eyes, ears and brain and in 60% of the cases, causes death before the patient’s 30th birthday. The nine-year-old daughter of Stephanie Snow Gebel, and granddaughter/niece of Jack and J.T. Snow, Raquel, was diagnosed with Wolfram syndrome in the fall of 2010.

"Play the game of life like it's fourth and goal."
-Jack Snow
Sample Image

The Snow Foundation still supports research being done at WUSM, in addition to research that is being conducted in France, Denmark, Spain, Great Britain and Estonia. The Foundation also provides support for the patients and families that are dealing with Wolfram syndrome.

The Snow family and the Foundation have, in a very short time, raised significant funds and awareness about this disease, in hopes of one day providing critical information that will be used to halt the progression of juvenile onset diabetes.

Our Story

Read about the Snow Family and their fight to save the life of young Raquel Gebel, granddaughter of Jack Snow and niece of J.T. Snow. Raquel was diagnosed with Wolfram syndrome in late 2010.

Regis Philbin Joins the Snow Foundation Team

Regis Philbin, a Notre Dame alum and fan of Jack Snow, volunteered his time and talent to narrate a short film on The Snow Foundation. Please watch and share this 11-minute film.

The Evolution of Wolfram Syndrome Research

From the early days of Wolfram syndrome research in 1994 by Dr. Alan Permutt to today, the scientists studying this rare disease are getting closer to clinical trials everyday.