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What Is The Jack and J.T. Snow Scientific Research Foundation?
The Jack and J.T. Snow Scientific Research Foundation began as The Snowman Fund to raise money for Wolfram syndrome research at Washington University's School of Medicine (WUSM) in late 2010. The Fund has now evolved into the Foundation, sharing the same mission, to raise awareness of and funding for research that one day will stop the progression of Wolfram syndrome. Wolfram syndrome is a rare disease that presents itself as juvenile diabetes that results in the degradation of the nerve cells in the eyes, ears and brain and in 60% of the cases, causes death before the patient’s 30th birthday. The nine-year-old daughter of Stephanie Snow Gebel, and granddaughter/niece of Jack and J.T. Snow, Raquel, was diagnosed with Wolfram syndrome in the fall of 2010.
"Play the game of life like it's fourth and goal."-Jack Snow
The Snow Foundation still supports research being done at WUSM, in addition to research that is being conducted in France, Denmark, Spain, Great Britain and Estonia. The Foundation also provides support for the patients and families that are dealing with Wolfram syndrome.
The Snow family and the Foundation have, in a very short time, raised significant funds and awareness about this disease, in hopes of one day providing critical information that will be used to halt the progression of juvenile onset diabetes.
Read about the Snow Family and their fight to save the life of young Raquel Gebel, granddaughter of Jack Snow and niece of J.T. Snow. Raquel was diagnosed with Wolfram syndrome in late 2010.
Regis Philbin, a Notre Dame alum and fan of Jack Snow, volunteered his time and talent to narrate a short film on The Snow Foundation. Please watch and share this 11-minute film.
From the early days of Wolfram syndrome research in 1994 by Dr. Alan Permutt to today, the scientists studying this rare disease are getting closer to clinical trials everyday.