THE JACK AND J.T. SNOW SCIENTIFIC RESEARCH FOUNDATION

  • Wolfram Syndrome Researcher Awarded Professorship in Medicine

    On April 1, 2013, Dr. Fumihiko Urano was awarded the Samuel E. Schector Professorship of Medicine at Washington University School of Medicine.

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  • How It All Began

    When Stephanie and Barclay Gebel found out that their daughter, Raquel, was diagnosed with Wolfram syndrome, they had nowhere to turn for answers or support. There is little known about Wolframs and they knew it was up to them to help change this.

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  • Study to analyze brains of kids with rare disorder

    Researchers at Washington University School of Medicine in St. Louis have received a five-year, $2.7 million grant to detect and analyze differences in the brains of children with a rare illness, Wolfram syndrome.

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  • Snow Family & Coach Fisher Meet With Wolfram Syndrome Researcher, Dr. Timothy Barrett

    In October, the Snow Foundation traveled with the Rams to London thanks to Coach Jeff Fisher and the Rams’ organization.

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  • Three Generations of Hope

    This picture is of Jack Snow, his daughter Stephanie and the feet of his granddaughter Raquel. Jack went with Stephanie to take Raquel’s three month pictures, the photographer thought this would be a special and unique way to have her ”Papa” included. Unfortunately, six months later, Jack passed away from complications from a staph infection. We believe this photo truly captures the spirit of our mission.

  • J.T. Snow and his Inspiration

    Raquel Gebel, the niece of J.T. Snow, was diagnosed in late 2010 with Wolfram syndrome, a rare and devasting form of Type I Diabetes. Since the diagnosis, Snow has worked tirelessly to raise awareness of Wolfram syndrome and funding to provide ongoing research on the disease.

  • The Snowmen

    Jack Snow and his son J.T. Snow

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What Is The Jack and J.T. Snow Scientific Research Foundation?

The Jack and J.T. Snow Scientific Research Foundation began as The Snowman Fund to raise money for Wolfram syndrome research at Washington University's School of Medicine in late 2010. The Fund has now evolved into the Foundation, sharing the same mission, to raise awareness of and funding for research that one day will stop the progression of Wolfram syndrome. Wolfram syndrome is a rare disease that presents itself as juvenile diabetes that results in the degradation of the nerve cells in the eyes, ears and brain and in 60% of the cases, causes death before the patient’s 30th birthday. The eight-year-old daughter of Stephanie Snow Gebel, and granddaughter/niece of Jack and J.T. Snow, Raquel, was diagnosed with Wolfram syndrome in the fall of 2010.

"Play the game of life like it's fourth and goal."
-Jack Snow

The Snow Foundation still supports research being done at Washington University's School of Medicine in St. Louis (WUSM), in addition to research that is being conducted in France, Denmark, Spain, Great Britain and Estonia. The Foundation also provides support for the patients and families that are dealing with Wolfram syndrome.

The Snow family and the Foundation have, in a very short time, raised significant funds and awareness about this disease, in hopes of one day providing critical information that will be used to halt the progression of juvenile onset diabetes.